IPPSO NEWS MAGAZINE
Vol 2 No. 18 June
2009
Editors: Mike and Yvonne Isaacson
It is ability that counts - not disability
Disclaimer
The views of those who contribute to this
publication are not necessarily in agreement with those held either by IPPSO or
by the editors of this publication.
From the Editors Desk
I am extremely disappointed.
There have been a number of reactions from readers in regard
to last month's issue of the IPPSO magazine in which I published
some "polio" and other stories submitted by members (see
"Letters to the Editor below) but, very sadly, not one of you has sent me
(or even promised to send me) your own story - on polio or any other
subject. Last month's issue was, I think, sufficient to show that personal
stories make for very good reading.
So I have some questions for all of you........ what is the matter
with you guys and gals? Apart from a few notable exceptions, most of you never
submit anything at all! Am I wasting my time asking you to do so? Maybe the
answer is that you never read this magazine.
Do you??
Mike Isaacson
Letters to the Editor
From Claude H. Hess
In the May 2009 issue of IPPSO news letter, the picture with
the paragraph talking about my getting married in 1950 is that of my
second wife that I married in 2004. I am attaching an image of Irene and
I, whom I married in 1950. Would you please correct this error.
Thank you.
Sorry about that Claude, and thank you for
pointing out the mistake.
Here is the correct picture, and a very nice one
it is too!
Mike Isaacson Ed.
From Shari Fiksdal
I was so pleased, amazed and sometimes saddened to read the
wonderful articles from our members in the last Magazine. Thank you all
for sharing your stories with us. They were all so well written and so
full of the pain, yet the positive attitudes of each of you made it uplifting. You
make it all so real and personal, and I must say interesting, to know what each
of you went through in your life with Polio and now PPS. Thank all of you
who participated and opened your hearts to your IPPSO family.
Hehehe Corner
Behold the hippopotamus!
We laugh at how he looks to us.
And yet, in moments dark and grim
I wonder how we look to him.
Peace, peace, thou hippopotamus!
You really look all right to us.
As you, no doubt, delight the eye
Of other hippopotami.
(author unknown
Women With PPS Experience Menopause Differently
Than the Non-disabled
Women with PPS experience menopause differently than their
non-disabled peers - physiologically, physically and psychologically -
according to a study in 2004 funded by Post Polio Health International.
A team of researchers from the University of Michigan Health
System conducted a nationwide study to explore the experience of menopause
for 500,000 women in the U.S. with a history of polio. To highlight the
unique contribution of menopause, men with a history of polio also participated
and served as a control group.
In their final report "Women with Polio: Menopause, Late
Effects, Life Satisfaction and Emotional Distress," the researchers
present significant findings:
"This study provides the first solid evidence that post-polio
women experience menopause differently," said Joan L. Headley, Post-Polio
Health International executive director. "Post-polio women should educate
themselves and their health care providers about the differences in their
experiences. While there is much more to be learned about menopause in the
context of disability, this study is an important first step toward future
generations of menopause studies that no longer ignore women with
disabilities."
Researchers Claire Z. Kalpakjian, Ph.D., principal investigator
and project director, and Denise G. Tate, Ph.D., co-principal investigator,
both from the University's Department of Physical Medicine and Rehabilitation,
and Elisabeth H. Quint, M.D., co-investigator, from the Department of
Obstetrics and Gynecology, studied almost 1,000 post-polio women, aged 34 to 99
from 49 states during 2003.
"Of the 30 million women with physical disabilities in the
United States, more than 16 million are over the age of 50, constituting a
large and growing population of women who have been relatively understudied
with regards to the psychological and physical experience of menopause,"
said Kalpakjian. "Women with disabilities in general have long been
neglected in rehabilitation research. As such, little is known about the unique
biological milestones women experience as they age and the interaction of
physical disability and these biological changes."
Wnt7a Activates the Planar Cell Polarity Pathway
to Drive the Symmetric Expansion of Satellite Stem Cells.
Le Grand F, Jones AE, Seale V, Scimè A, Rudnicki MA.
Sprott Center for Stem Cell Research, Ottawa Hospital Research Institute, Regenerative Medicine Program,
501 Smyth Road, Ottawa, ON
K1H 8L6, Canada; Department of Medicine, University of Ottawa,
451 Smyth Road,
Ottawa, ON K1H 8M5, Canada.
Satellite Cells in skeletal muscle are a heterogeneous
population of stem cells and committed progenitors. We found that quiescent
satellite stem cells expressed the Wnt receptor Fzd7 and that its
candidate ligand Wnt7a was unregulated during regeneration.
Wnt7a markedly stimulated the symmetric expansion of satellite stem cells but did
not affect the growth or differentiation of myoblasts. Silencing of Fzd7
abrogated Wnt7a binding and stimulation of stem cell expansion. Wnt7a signaling
induced the polarized distribution of the planar cell polarity effector Vangl2.
Silencing of Vangl2 inhibited Wnt7a action on satellite stem cell expansion.
Wnt7a overexpression enhanced muscle regeneration and increased both satellite cell numbers
and the proportion of satellite stem cells. Muscle lacking Wnt7a exhibited a
marked decrease in satellite
cell
number following regeneration.
Therefore, Wnt7a signaling through the planar cell polarity pathway controls
the homeostatic level of satellite stem cells and hence regulates the
regenerative potential of muscle.
Hehehe Corner
If you throw a hand grenade into a
kitchen in France , does it result in Linoleum Blownapart?
Itzhak Perlman - Violinist Extraordinaire
Itzhak
Perlman was born in Tel Aviv on August 31, 1945. At the age of four he
contracted polio, which caused permanent paralysis of his legs, leaving him to
rely on crutches and braces for the rest of his life.
He is regarded as one of the greatest violinists of the late 20th
century, and is certainly among the most famous.
Early days
Like I said, Perlman contracted polio at the age of four. He made
a good recovery, learning to walk with the use of braces and crutches. Despite
his handicap, young Itzhak began showing talent on the violin, and his father
Chaim, a barber, quickly recognized his son’s unusual abilities and arranged
for lessons for him at the Music Academy of Tel Aviv. Soon Itzhak began giving
concerts and attracting attention throughout Israel. American television talent
agent Ed Sullivan learned of Perlman’s abilities and brought the 13-year-old to
New York for a 1959 appearance on his Caravan of Stars show, where the young
virtuoso continued to attract attention. He enrolled at the Juilliard School of
Music, studying with Ivan Galamian and Dorothy DeLay.
Short Summary about Itzhak Perlman
He made his official debut in 1963 at Carnegie Hall with a
performance of the F sharp minor Wieniawski Concerto and went on to win the
Leventritt Competition, one of whose prizes was an appearance with the New York
Philharmonic, then led by Leonard Bernstein.
After these triumphs Perlman was taken on by impresario Sol Hurok
and given a heavy schedule of concerts in the United States, Europe, Asia, and
Israel over the coming years. He also began making recordings with RCA and
would eventually sign contracts with EMI, Sony, Teldec, and others. Over the
next three decades, his recordings would include the concertos of Beethoven, Brahms,
Sibelius, Mendelssohn, Berg, the two by Prokofiev, Tchaikovsky’s Piano Trio,
Dvorak’s Sonatina, Paganini’s Caprices, and many others.
He returned to Israel in 1965 for a season of concerts, making his
British debut the same year at the Festival Hall with the London Symphony
Orchestra. Perlman’s fame grew rapidly in the 1970s and he began appearing
regularly on television programs, like the children’s show Sesame Street, the
Tonight Show, David Letterman, and various specials on the PBS network.
Never forgetting his early encouragement, from his teachers as
well as from Isaac Stern, Perlman from the beginning of his career made a habit
of encouraging young talent and has over the years held a variety of teaching
posts, including master classes at London’s South Bank Summer Music Series
beginning in 1968, the Meadowbrooks Music Festival in 1970, and close
involvement, alongside his wife Toby, in Perlman Music program for young
people, beginning in 1998.
He also became a frequent performer at White House events,
especially during the Reagan administration. In 1986, President Reagan awarded
him a Medal of Liberty, an award recognizing the contributions of foreign-born
Americans. By 1990 Perlman had performed with virtually every major orchestra
in the world and with almost every important conductor. He also signed a new
contract that year with EMI, the label for whom he has made the most
recordings.
Achievements
On the Fourth of July, 1986, Perlman was one of twelve
first-generation Americans to be honored with the Medal of Liberty in
recognition and appreciation of his contributions to the United States. In
December 2000, President Bill Clinton awarded Perlman the National Medal of
Arts.
It’s Itzhak Perlman’s passion for music that recommends him to the
world. The joy of making music has seldom been translated so well and it is
this combination of talent and personal charm which makes him such an
outstanding violinist and the greatest violin virtuoso of our time.
Hehehe Corner
The short fortune-teller who
escaped from prison was a small medium at large
Did You Know?
About the Handicapped Travel Club, Inc? It was formed in 1973
to encourage traveling for people with a wide range of
disabilities. The Club encourages people with disabilities to travel,
to meet and to share information on making vehicles accessible for the
disabled. The Club has many members, they publish a newsletter, have local
get-togethers and sponsor an annual rally as well as an occasional regional
rally which is held in various states in the USA.
Who Can join?
Originally. at least one family member had to be handicapped, but a lot of
able\bodied folk wanted to join because they approved of the idea, so
membership was opened to everyone. There are no limitations as to color, race,
religion, age, disability or political beliefs. It is just one big happy
family.
In addition, the club has developed resource information that
includes RV dealers, manufacturers, rental agencies and conversion facilities
that will provide vehicles for the disabled. Interested? Go to Google and
search for "Handicapped Travel Club".
Normal Sized People Get No Respect
Normal sized people, stand up and be counted!
Obese people (and all of us PPS'ers are obese, aren't we?) are the subject of
ridicule, derision and seen by the health community as health risks. Extremely
thin people are the subject of ridicule, derision and seen by the health
community as health risks. Blah. Blah. Blah.
Boy, talk about two groups whining and getting all the attention!
What about normal sized people? You know them. Many are probably
part of your family, a friend or hey, they might even be you. Normal sized
people don't eat too much and they don't eat too little. They can buy off the
rack with no problem and they're not the subject of stand-up monologues,
South Park episodes or health programs hosted by Dr. Sanjay Gupta of CNN.
Normal sized people do exist America!! No matter how
much you'd like to pretend they don't, they're all around us. They smile at you
as they walk the supermarket aisles with carts full of just enough food to
maintain their textbook physiques. They share the waiting room at your doctor's
office with you as you wait for your yearly physical results. Your physical may
come out too fat or too thin, while theirs will be perfect.
Frankly, I hate our current societal mindset of ignoring normal sized people.
Where do we get off putting the normal sized of our country into little dark
boxes and hiding them away?
There are all sorts of support groups for the extremely big and the extremely
thin. Fat people have chubby chasing groups to alleviate the pressure and
ostracism of being overly pleasantly plump. Extremely thin people have the
fashion industry to pay them ridiculously large amounts of money to make a
living as human coat hangers.
So as the obsessively obese and the terrifically thin get to party with each
other and their admirers, work for the fashion industry as large plus sized
models or super elite fashion plates, once again the normal sized man or woman
gets lost in the shuffle.
Where does it end America? What does the normal guy or gal have to do to be
noticed? What is it going to take to make normal sized people accepted?
2009 Euro Health Consumer Index
The objective is to compare the extent to which the national
healthcare systems of Europe take the patient and consumer into consideration
in 2009.
For the fifth year running, Health Consumer Powerhouse (HCP) is
asking health campaigners across Europe to help it compile the annual Euro
Health Consumer Index. This will measure the user-friendliness of national
healthcare systems across 33 countries in Europe.
If you would like to contribute your views on the condition of
your country's healthcare system in 2009, you will find a link below to the
survey's online questionnaire. This year's questionnaire is short, only 15
questions, and should take no more than about 10 minutes of your time to
complete. The closing date is Tuesday, August 25th, 2009
If you are interested in the questionnare, go to Google and type
in:-2009 Euro Health online questionnaire.
Hehehe Corner
When cannibals eat a missionary,
do they get a taste of religion?
Eradication of Polio
Fears about vaccination, political unrest and
global financial crisis threaten 20 years of progress.
Since the world’s top health and humanitarian organizations first
joined forces in 1988 to eradicate polio by the year 2000, the number of polio
endemic countries has shrunk from 125 to four and the number of cases per year
equals what was once a daily average. And yet, polio continues to threaten the
health of children around the world.
The
current polio resurgence can be traced back to 2003 when rumors circulated in
Nigeria that the oral polio vaccine used to immunize children would spread HIV
and sterilize young girls. After political leaders endorsed the rumors,
vaccination programs in the country came to a halt for 11 months.
By 2006 polio strains originating from Nigeria had spread to 20
previously polio-free countries in both Africa and Asia, resulting in more than
5,000 cases of paralytic polio. At the end of 2007, vaccination campaigns
contained polio transmission caused by importations in all of the affected
African countries except Angola, Chad, the Democratic Republic of Congo, Niger
and Sudan. During the past year, however, an additional 32 wild poliovirus
importations originating from these countries resulted in the current outbreaks
in three regions of Africa.
Uninterrupted wild poliovirus (WPV) transmission continues in
northern India due to reduced oral poliovirus vaccine (OPV) effectiveness and
also in Pakistan and Afghanistan, where conflict prevents children from
receiving vaccine.
Health officials agree that as long as virus transmission continues, Western
nations are at risk. “WPV is only a plane ride away from the United States,”
said Walter A. Orenstein, MD, deputy director of vaccine-preventable
diseases at the Bill & Melinda Gates Foundation and Infectious
Diseases in Children Editorial Board member.
“If we let down our guard, if our immunization coverage drops, there
is certainly the possibility of a polio outbreak,” Orenstein said.
In an interview, Steven L. Cochi, MD, MPH, senior advisor
in the CDC’s Global Immunization Division, said, “Every country is vulnerable
as long as any country is not adequately implementing the proven strategies
that will eradicate polio.”
Risk for U.S. importation
Although the United States has not had any domestically acquired
paralytic WPV cases since 1979, officials emphasize that health care providers
and the public must remain alert. Assuring high levels of immunization coverage
and considering polio in the differential diagnosis of any patient who presents
with acute flaccid paralysis are a physician’s two duties to protect patients
against the risk of imported poliovirus, according to Orenstein.
“We know today that nothing is far away. Diseases cross borders so easily,”
Aloudat said. “In 2003, severe acute respiratory syndrome jumped from East Asia
to Canada in a matter of days. Just a few years ago polio jumped from the Port
of Sudan across the Red Sea and into Gulf countries such as Saudi Arabia and
Yemen.”
Current vaccine recommendations in the United States state that
children should receive four doses of inactivated poliovirus vaccine (IPV) —
with the first dose administered at age 2 months, the second at 4 months, a
third at 6 to 18 months and the last at 4 to 6 years.
U.S. polio vaccine coverage levels were high in 2007 with 92.6% of
children aged 19 to 35 months having received at least three doses. More than
95% of children were covered in time for school entry, data from the last
complete National Immunization Survey indicated.
However, health officials warn that the public can become
complacent, particularly about diseases they may have never seen.
“Pediatricians must be ever vigilant about the possibility of
polio and be clear to parents and families that vaccination must continue to
provide a barrier of protection against the possibility of being exposed to an
importation of polio from parts of the world where it still exists,” Cochi
said.
The other half of prevention is recognition of cases should they
occur. Physicians a century ago were more adept at diagnosing polio without
help from modern technology. “Today it would be much harder for us to even
suspect the disease in the West,” Aloudat said.
Pediatricians should consider polio in any child with acute
flaccid paralysis who has traveled to an area where wild polio viruses are
being transmitted, Orenstein said. Because only one in 200 cases of polio
result in paralysis, it is important to recognize that children can still
contract the disease from a person with an asymptomatic infection. If a
physician suspects polio, they should contact their state health department
immediately to ensure that the proper specimens are collected. The clinical
diagnosis of polio is usually confirmed through detection of polio viruses in
stool samples.
Easing vaccine anxiety
In Western nations, vaccine anxiety poses the biggest threat to
polio eradication efforts as more parents opt out of vaccinating their
children. Aloudat called these decisions “extremely unwise and dangerous.”
“This is not a unique phenomenon. In many Western countries with better education
and more resources, people wrongly believe that vaccines can endanger their
children,” Aloudat said. “Eradicating a disease isn’t only about delivering
vaccine. … It’s about delivering a message and helping communities become more
aware and better informed.”
At the global level, fostering trust between medical and
indigenous communities is one of the Red Cross and Red Crescent Society’s main
aims during emergency and routine polio vaccination rounds. Community
volunteers play a vital role in the emergency vaccine campaigns ongoing in
Africa, where volunteers travel door to door sharing life stories and telling
families about the polio vaccine. The goal is to reach 25 million of the most
remote, hard-to-reach children who remain unvaccinated in outbreak- affected
countries.
“Our volunteers carry global fundamental principles, approaches
and tools, and they take them and adapt them to how their communities think,” Kate
Elder, MPH, senior officer for polio and measles at the International
Federation of Red Cross, said. “They deliver simple messages and show by
example how global programs can be translated into local activity.”
What’s next in endemic countries?
Although polio vaccine coverage rates remain high in the United
States and other Western nations, many areas of the world lag significantly
behind WHO’s 2010 goal of 90% global vaccine coverage. Increasing cooperation
between health officials and political leaders, and improving vaccine
implementation strategies in the remaining endemic countries are major goals.
Nigeria’s polio vaccine coverage remains the lowest of the endemic
countries at 61%. “The main problem in Nigeria is shortcoming in the delivery
of the vaccine,” Cochi said. “If we could adequately immunize children with
good implementation of strategies, polio would already be gone.”
In 2008, 799 cases of WPV occurred in Nigeria, almost half of the
1,652 cases worldwide last year.
Nigeria’s failure to achieve adequate vaccination rates hinges on issues that
go beyond public trust and into the realms of inadequate organization,
supervision and accountability at the government level.
“Nigeria has a very decentralized form of government and health
care delivery. Getting ownership, particularly in northern states, by political
leadership and health officials has been a very slow process,” Cochi said. “But
there are signs that that is now moving strongly in the right direction.”
In March of 2006, Eyitayo Lambo, Nigeria’s federal minister of
health, signed the Communiqué of Abuja along with representatives of 10 other
African nations, renewing their commitment to meet international health targets
including polio eradication.
“Nigerian leadership is taking polio extremely seriously,”
Orenstein said. “We are very impressed with the kinds of efforts they’re making
now.”
Vaccination rates in Afghanistan and Pakistan are slightly higher
than those in Nigeria, at 83% in each country. Lack of security in
Taliban-controlled areas — particularly in Kandahar and the southern region of
Afghanistan and along the eastern border where Afghanistan meets the northwest
frontier province of Pakistan — has resulted in whole groups of children not
being vaccinated.
These groups of children can trigger small outbreaks, Cochi
explained. Like Nigeria, inadequate vaccine implementation is another factor
behind poor coverage in districts where conflicts are not occurring.
But political commitment from Pakistani leaders has improved during the past
nine months, with the president and prime minister creating a polio eradication
task force to achieve better vaccine delivery in the few districts still
sustaining poliovirus spread, Cochi said.
“The government has committed to work with the World Bank to have
a sustained way of financing OPV over the next three years so there won’t be
interruptions or shortages in vaccine supply, and there’s more effort to
improve supervision and accountability in poor performing districts,” he said. Suboptimal
vaccine efficacy
The vaccine situation in India — the last of the four countries
that has never interrupted transmission of wild polio viruses — is unique. For
unknown reasons, the effectiveness of OPV is reduced, particularly in two
northern states, Uttar Pradesh and Bihar, compared with other areas of the
world. In addition, polio transmission is facilitated in these areas because of
crowded living conditions, poor sanitation and frequent migration. Eradication
efforts in this part of the world have required a tailored approach.
“We don’t really understand it, but these are the two most
populous, poor and crowded states of northern India where the poliovirus
continues to hang out,” Cochi said. High incidence of diarrheal illness among
children due to poor sanitation also contributes to reduced vaccine efficacy,
he explained. Achieving adequate immunity has required administering many more
doses of OPV in Indian children than those in other areas of the world.
“Attempts have been made to overcome these shortcomings by using a monovalent
OPV as opposed to the trivalent vaccine,” Cochi said. “Then you remove the
competition from the vaccine itself for those three different vaccine viruses
to successfully infect the intestinal tract and cause a good immune response.”
A recent case-control study in Uttar Pradesh concluded that trivalent OPV had
an effectiveness of 11% per dose against type 1 polio. In contrast, monovalent
OPV type 1 had an effectiveness of 30% per dose.
Health officials have been using monovalent OPV to vaccinate against
the two WPV strains still circulating in India, WPV type 1 and WPV type 3.
However, officials are stepping up efforts to wipe out WPV1 because of the
higher association between this strain and paralysis, as well as its propensity
to spread further faster.
“The focus has been on getting rid of the type 1 virus as the priority because
that will disproportionately reduce the number and size of polio outbreaks and
reduce the risk of spread to other countries and regions of the world,” Cochi
said.
Additionally, health officials are discussing the possibility of
adding IPV to OPV during mass vaccination campaigns in some of the highest-risk
districts of northern India to improve immune responses by taking advantage of
both vaccines. At the moment, there are no current plans to implement
widespread IPV administration during this pre-eradication phase.
“In northern India, the issue is sustaining good quality
immunization rounds with the monovalent vaccines,” Cochi said. “We’re going to
be looking very closely to see whether WPV1 survives the low season, and we
should know by June or July whether or not we’re successful at snuffing out
WPV1 in India.”
Postpolio paradigm shift
The potential for wild polio viruses to reseed the population
post-eradication and the potential for vaccine polio viruses to mutate and
rarely take on the transmissibility and virulence characteristics of wild polio
viruses (circulating vaccine-derived poliovirus, cVDPV) and the fact that some
immunocompromised people can be chronic shedders of virus have caused many in
the health care community to reconsider the Eradication Initiative’s initial
goal to cease all vaccination after the last documented case of polio.
Continued use of OPV, particularly in populations with low immunization
coverage, can lead to circulation of the vaccine viruses, which over time can
accumulate the critical mutations to become cVDPVs. Since 2000, at least 11
outbreaks of cVDPV have been detected. Nigeria has had ongoing cVDPV type 2
since 2005 with at least 193 cases.
“Because of the combination of those rare circumstances, I think
we’ve altered our thinking about a post-eradication world,” Cochi said. “It
seems necessary to be using IPV for at least some period of time following
eradication of naturally occurring poliovirus.” This would assure population
immunity to prevent spread of both wild viruses, if introduced, or of vaccine
viruses.
In March, health officials in Minnesota implicated vaccine-derived
poliovirus in the paralysis and death of a woman there. The patient had an
inherited immunodeficiency disease, and, based on genetic sequencing, CDC
officials believe the infection was latent for more than 10 years.
“It’s not known why it manifested itself at this point and time,
but she most likely got the virus from someone who had received the
live-attenuated OPV vaccine before its use in the United States was
discontinued, possibly from exposure to one of her children,” Cochi said.
Only about 45 cases of chronic infection with a vaccine-derived poliovirus
have been documented since the inception of live-attenuated OPV in the United
States in the 1960s, and all were people with inherited immunodeficiency
diseases.
Vaccine-derived polio from immune deficient people is extremely
rare, Cochi emphasized, and depends on people with already-vulnerable immune
systems coming in contact with someone who has received oral polio vaccine and
is still shedding the virus.
Cochi projects that after at least three years of intensive
surveillance, efforts to replace OPV with IPV will commence.
The global economy
Slumping economies in many Western nations raise questions about
the future of donation-dependent eradication programs, but commitments by
several governments and nonprofit organizations suggest that polio programs may
weather the economic downturn.
In early 2009 the Gates Foundation awarded Rotary International a
$255 million grant, and Rotary pledged to raise another $100 million in
donations over the next three years. Combined with a joint commitment of $280
million from the governments of the United Kingdom and Germany, funds so far
this year total $630 million.
Elder said that pleas from the International Federation of Red
Cross and Red Crescent Societies for emergency vaccine campaign funds are slow
to be answered, despite the modesty of recent proposals compared with those in
the past. In April the Federation launched an appeal for $2.1 million in
emergency funds to help with the African outbreaks.
“Maybe in better economic times we would have fulfilled the money
we are requesting within 48 hours because people would be eager to give, but
people now are less eager because of internal problems,” Elder said.
Many have called for renewed commitment to eradicating the disease. “It would
be a terrible tragedy to let polio out of the bag now,” Orenstein said. “We’re
so close. We just need to finish the job.
“If we could demonstrate as we did with smallpox that the world
can come together against a common enemy and fight that enemy and be successful,
we set the stage for solving all sorts of other problems in global health.
Polio eradication is a win-win effort for the United States and the world. In
the world we prevent this terrible crippling disease, and in the United States
we reduce the threat of importation,” Orenstein said.
Hehehe Corner
A chicken crossing the road is
poultry in motion
Changes in ability, perceived difficulty and use
of assistive devices
in everyday life: a 4-year follow-up study in people with late effects of
polio.
Thorén-Jönsson AL, Willén C, Sunnerhagen KS.
The Institute
of Neuroscience
and Physiology - Section for Clinical Neuroscience and Rehabilitation Gothenburg University,
Göteborg, Sweden.
Submitted by Barb Oniszczak, IPPSO Recording Secretary
Background
There are numbers of persons living in the community with late effects of
polio, of which many develop new symptoms, but the course of progression is
unclear.
Objectives
To assess changes after 4 years in ability and perceived difficulty in persons
with late effects of polio.
Material and methods
-
Community dwelling persons from a polio clinic. Information was gathered by
questionnaire and interview on demographics, age at polio onset, affected body
parts, health problems, the use of assistive devices, housing condition and activities of
daily living (ADL) function as well as perceived difficulties.
Results
There were no significant increase in frequency of ADL dependency
but perceived difficulties increased significantly and more used mobility devices.
Conclusions
Over 4 years, more persons perceived difficulties and the use of
assistive devices increased. This might reflect adaptation and
acknowledgement of problems previously ignored. Time is a factor in integrating
knowledge and adaptation.
Hehehe Corner
Once upon a time there was a woman selling pretzels on a street
corner. She had a big sign reading "PRETZELS 50c" Every Thursday, a
man used to pass by and put 50c into her tin, but he never
took a Pretzel. This carried on for about six months - he would put the 50c
into her tin and walk on.... never once did he take a pretzel.
One day, he walked past and put the 50c in her tin as usual, and
she said to him "Excuse me mister... the price of pretzels has gone up.
It's 75c now!"
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Price: $65.00
Cozy adult blanket sleeper zips down the front
or the back. 100% polyester fleece or 100% cotton knit. This perfect, cuddly
garment can have the option of having long or short legs and sleeves.
The neck, sleeves, and legs are finished with knit cuffs.
Can be made with feet with non-skid bottoms for an additional $5. It also
can have snaps in the crotch for an additional $10. A long zipper to the ankle
is also available for an extra $10.
Very Washable.
FLEECE
COLORS: Baby Blue, Royal Blue, Hunter Green, Yellow, Navy, Pink, Red, Jade,
various prints. Please ask for micro-fleece (a light weight fleece that is less
bulky but equally as warm as the standard weight fleece) availability if
preferred.
KNIT COLORS: Baby Blue, Royal Blue, Hunter Green, Yellow, Navy, Fuchsia, Aqua,
cardinal, various prints. Thermal knits are also available in Grey, Sage Green,
and Navy.
SIZES: Chest sizes, Small (30-32"), Medium (34-36"),
Large (38-40"), Extra Large (42-44"), 2XL (46-48")
ITEM#:
#200 Fleece Blanket Sleeper w/no extras (S-L) $75.00
#200 Fleece Blanket Sleeper w/no extras (XL-2XL) $80.00
#201 Knit Blanket Sleeper w/no extras (S-L) $70.00
#201 Knit Blanket Sleeper w/no extras (XL-2XL) $75.00
Perfect
pajama for the undresser and the Alzheimer person! The garment has a back
zipper and an elastic waist.
Elbow length or long sleeves (additional $5), long or short pants.
Cut full for ease of dressing and movement.
This pajama can be made into a 2-piece set if required.
FABRICS:
Ladies & men's cotton prints
Double napped flannel in print and solid colors - please call for availability.
SIZES:
Chest measurements: Small(32-34); Med(36-38); L(40-42) XL(44-46); XXL(48-50);
XXXL(52-54)
ITEM #:
# 205 - - Pajamas...S-L..........$53.00
# 205 - - Pajamas...XL-3XL...$59.00
A must have for
easy dressing! This comfortable gown snaps down the front for fingers that may
not be so nimble anymore.
Sleeves are elbow length but can be made long (an additional $5).
Snaps or buttons down the front for easy dressing.
FABRICS:
Ladies & men's cotton prints
Double napped flannel in print and solid colors - please call for availability.
SIZES:
Chest Measurements: Small (32-34), Med. (36-38), Large (40-42), X-Large
(44-46), XX-Large (48-50), and XXX-Large (52-54)
ITEM #:
#215 Night Gown...Sizes S-L..........$39.00
#215 Night Gown...Sizes XL-3XL...$43.00
Specially For
You, Inc.
15621 309th Ave.
Gettysburg, SD 57442
Carolynn Weinert
(605)765-9396
customerservice@speciallyforyou.net
Hehehe Corner
The only job where you start at
the top is when you are digging a hole
Coping with PPS
Submitted by Barbara Onisczcak, IPPSO Recording Secretary
Jim Evans, Oklahoma City Examiner.com
http://tinyurl.com/nly9nl
Excerpt:
"What can you do? Although there is no known way to prevent PPS, most
physicians will recommend that you lead a healthy lifestyle including moderate
exercise, a well-balanced diet, and regular checkups. Just as your physical
therapy was so important in your initial recovery, physical activities such as
water exercises (particularly in warm water 85-95 degrees), tai chi, and mild
forms of yoga can be beneficial in the treatment of your PPS, using your own
level of tolerance to determine your limitations"
Thought For The Month
"A free man thinks of death
least of all things; and his wisdom is a meditation not of death but of
life."
-- Baruch Spinoza, "Ethics"



